JIR ongoing projects

Note : Patients in our database who prefer not to participate in specific projects are encouraged to communicate their choice to their physicians (please mention the project name). We respect and support your decisions regarding project involvement. Thank you for being part of our valuable medical research community.

llaris® Vie Réelle

This project aims to evaluate the real-life conditions of use of ILARIS in patients with FMF, MKD or TRAPS in France. This project was initiated by Novartis at the request of the HAS Transparency Commission in the context of an application for an extension of the indication for Ilaris®. This project will result in a report transmitted to the HAS Transparency Commission

Novartis, France

Analysis of treatment approaches in Juvenile Dermatomyositis patients

Description of inflammatory myopathies within the JIR cohorte, i.e., clinical characteristics, treatment approaches and main outcomes (achievement of remission or low disease activity, and accrual of disease damage)

Helmut Wittkowski, Universitätsklinikum Münster, Münster, Germany

Remission of juvenile idiopathic arthritis (JIA)-associated uveitis

Time to remission of JIA-uveitis after introduction of anti-TNF therapies.

Yan Guex-Crosier, Hôpital Jules-Gonin, Lausanne, Switzerland

Anti-IFN-alpha2 AAbs in a french multicentric cohort of pediatric patients with SLE

Assess the presence of anti-IFN-alpha2 AAbs in a french multicentric cohort of pediatric patients with SLE

Alexandre Belot, Hospices Civils de Lyon, Lyon, France

Study of clinical features of patients with cryopyrin associated periodic syndromes (CAPS)

Study the prevalence of finger clubbing among patients with CAPS

Sophie Georgin-Lavialle, Tenon Hospital, Paris, France